A day in the life of Jackson!

I haven't blogged about Jackson in the last few weeks so I wanted to let you all know that Jackson is in Lebonheur today for a 24 hour EEG test. Because his disease effects his brain's activity they perform these test to check the brain activity for seizures. This is just another part of having to deal with this disease that most people never know about. Our efforts to raise awareness about this disease will not go unnoticed, please pass along Jackson's story and help us with our efforts!


This is a picture Jackson's mom sent me today from the hospital. You can't look at this little face and not instantly fall in love!


Jackson awake and smiling in his wheelchair!